I started FibroFibers because I was not well enough to work outside the home and needed an outlet for the fiber obsession that started while I was in the years-long process of being diagnosed with fibromyalgia. If you’re not familiar with fibromyalgia, it is a non-contagious disease that causes widespread pain, fatigue and a number of other “invisible” symptoms.
People with chronic, “invisible” illnesses or disabilities are sometimes known as spoonies; the term comes from an amazing essay written by Christine Miserandino, an equally amazing woman. It’s called The Spoon Theory, and it is a great way to explain to others what it is like to live with these types of illnesses. There’s actually a whole community of Spoonies that is run by the same woman.
It took me a lifetime of suffering and several years of seeing doctor after doctor, new specialist after new specialist, as well as going through batteries of tests and doing a lot of my own research to be diagnosed with fibromyalgia. That was far from the end of the trip, though. If anything, I’ve seen even more doctors since I received the diagnosis because all of them have a different idea as to how to treat the condition and, for me at least, most of them have been wrong.
It is astounding how many healthcare providers have extremely limited knowledge of this condition, and many also have some woefully mistaken ideas about it. Many think that it is a form of depression or some other psychological issue; others think it is caused by poor diet or too little exercise. One “quack” went so far as to insist that it is exclusively caused by sexual abuse! I have been blown away by how much I have had to try to educate my doctors about this illness; therefore, I decided that giving a portion of my profits would be a way to help fund research to educate providers and help to find treatments and perhaps even a cure. At this time, there is neither a known cause nor a cure.
Through FibroFibers, I support the National Fibromyalgia Research Association (NFRA). For each item sold, I donate $2.00 to NFRA. I chose them in particular because, unlike many of the larger organizations, they have no ties to the pharmaceutical industry. And all of the money they bring in goes to fund research and education. Being a small independent operation myself, I can identify with them!
I sell hand-dyed yarns. I was the child who, instead of drawing pictures, just dumped out my big box of crayons and rearranged them, or scribbled just to see the colors. Now I “play” with my dyes in a similar fashion, or else I’ll see a random thing and try to replicate the colors. Recently I had the pleasure of dyeing a skein of yarn to match my cat, at the request of a friend who makes amigurumi! My next project is learning how to spin yarn.
If you ever have any questions about yarn or fibromyalgia, please feel free to contact me: firstname.lastname@example.org